Welcome to the Pediatric Heart Network (PHN)

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For Parents

What is the Pediatric Heart Network?

Why Include Children in Research?

Should My Child Join a Study?

Rights and Responsibilities in a Study

Ensuring Safety in PHN Studies

My Child's Nutrition and Activity

Coping with a Chronic Illness

The Loss of a Child

For Healthcare Providers

What is the Pediatric Heart Network?

How Studies are Created and Monitored

Is a Clinical Study Right for your Patient?

How to Refer a Patient for a Study

For Researchers

Developing a Research Career

PHN Public Use Datasets

Relevant NHLBI Resources

Joining the PHN

Current Studies

Single Ventricle Extension

Completed Studies

Mitral Regurgitation Study (Observational)

Fontan Study (Observational)

Kawasaki Disease Study (Medication)

Single Ventricle Study (Medication)

Single Ventricle Study (Surgical)

Cardiomyopathy (VVV) Study (Observational)

Contact PHN Sites Publications

Kawasaki Disease Study (Medication)

Fontan Study (Observational)

Single Ventricle Study (Medication)

Cardiomyopathy (VVV) Study (Observational)

Single Ventricle Study (Surgical)

Helpful Resources

Fontan Follow-up Links: Parents/Patients Healthcare Providers Contact PHN Sites Brochures

Fontan Follow-up Brochures for Download

For Patients and Parents
Fontan Follow-up Study Brochure for Minor Patients (English)
Fontan Follow-up Study Brochure for Young Adult Patients (English)

Fontan Follow-up Study Brochure for Minor Patients (Spanish)
Fontan Follow-up Study Brochure for Young Adult Patients (Spanish)

Contact PHN Sites

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Last updated: August 4, 2010 11:29 AM