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For Parents
What is the Pediatric Heart Network?
Why Include Children in Research?
Should My Child Join a Study?
Rights and Responsibilities in a Study
Ensuring Safety in PHN Studies
My Child's Nutrition and Activity
Coping with a Chronic Illness
The Loss of a Child
For Healthcare Providers
What is the Pediatric Heart Network?
How Studies are Created and Monitored
Is a Clinical Study Right for your Patient?
How to Refer a Patient for a Study
Current Studies
Single Ventricle (Medication)
For Patients and Parents
For Healthcare Providers
Who to Contact
Download Brochures
Single Ventricle (Surgical)
For Patients and Parents
For Healthcare Providers
Who to Contact
Download Brochures
Single Ventricle Extension
For Patients and Parents
For Healthcare Providers
Who to Contact
Download Brochures
Marfan
For Patients and Parents
For Healthcare Providers
Who to Contact
Download Brochures
Marfan Trial Partners
Future and Completed Studies
Mitral Regurgitation (Observational)
FONTAN (Observational)
Kawasaki Disease
Cardiomyopathy (Observational)
Participating Hospitals
Publications
Helpful Resources
Glossary of Terms
(click the term for a definition)
ACE-I (angiotensin-converting enzyme) Inhibitor
Acquired Heart Disease
Adverse Effect/Event
Aorta
Aortic Root Z-Score
Aortic Valve
Assent
Atresia
Atrioventricular Septal Defect
Cardiac Catherization
Cardiac Magnetic Resonance Imaging (MRI)
Clinical Study/Trial
Confidentiality
Congenital Heart Defect
Consent Form
Coronary Artery Aneurysm
Data and Safety Monitoring Board (DSMB)
Dilated Cardiomyopathy
Echocardiogram
Electrocardiogram (EKG)
Exercise Testing
Fontan Procedure
Gammaglobulin
Genetic Evaluation
Ghent Criteria
Holter Monitor
Hypoplastic Left Heart Syndrome
Informed Consent
Institutional Review Board (IRB) or Research Ethics Board (REB)
Kawasaki Disease
MBT Shunt
Mitral Regurgitation
National Heart, Lung and Blood Institute (NHLBI)
National Institutes of Health (NIH)
Neurodevelopmental Exam
Norwood Procedure
Observational Study
Placebo
Principal / Study investigator
Randomized Clinical Trial
Randomly Assigned/Randomized
Research Coordinator
Research Team
Reye’s Syndrome
RV-to-PA Shunt
Seizure
Shunt
Side Effect
Steering Committee
Stenosis
Study Protocol
Subject
Ventricle
Department of Health and Human Services
National Institutes of Health
National Heart, Lung, and Blood Institute
Department
of Health and Human Services
National
Institutes of Health
National
Heart, Lung, and Blood Institute