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Johns Hopkins All Children's Heart Institute
Tampa / St. Petersburg, FL

PI: Jeffrey P. Jacobs
Phone Number: 727-767-6666

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension

Seattle Children's Hospital and Regional Med Center
Seattle, WA

PI: Dr. Mark Lewin
Phone Number: 206-987-5708

Enrolling patients in the following studies:
Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

NERI
Watertown, MA

PI: Dr. Lynn Sleeper
PI: Dr. Sharon Tennstedt

Coordinator: Beverly Slayton
Phone Number: 617-972-3110
E-mail address: bslayton@neriscience.com

2nd Coordinator: Tanya Olesker
Phone Number: 617-972-3228
E-mail address: tolesker@neriscience.com

Children's Hospital Boston
Boston, MA

PI: Dr. Jane Newburger
PI: Dr. John Triedman
Phone Number: 617-355-4201
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Fontan Follow-up Study, Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Stanford University School of Medicine
Stanford, CA

PI: Dr. David Liang
Phone Number: 650-736-0644

Enrolling patients in the following studies:
Marfan

Children's Hospital of Los Angeles
Los Angeles, CA

PI: Dr. Alan Lewis
Phone Number: 323-361-5644

Enrolling patients in the following studies: Single Ventricle Reconstruction Extension

Cedars-Sinai Medical Center
Los Angeles, CA

PI: Dr. David Rimoin
Phone Number: 310-423-9861

Enrolling patients in the following studies: Marfan

Heart Institute, Rady Children's Hospital
San Diego, CA

PI: Dr. Paul Grossfeld
Phone Number: 858-966-8066

Enrolling patients in the following studies: Marfan

Baylor Texas Children's Hospital
Houston, TX

PI: Dr. Daniel Penny
PI: Dr. Dean Andropolous
PI: Dr. Charles Fraser
PI: Dr. Lara Shekerdemian
Telephone Number: 832-826-1924

Enrolling patients in the following studies:
Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project, Dexmedetomidine Study

Washington University School of Medicine
St. Louis, MO

PI: Dr. Angela Sharkey
Phone Number: 314-454-6147

Enrolling patients in the following studies: Marfan

Children's Hospital & Clinic
St. Paul, MN

PI: Dr. Mary Ella Pierpont
Phone Number: 612-813-7737

Enrolling patients in the following studies: Marfan

Children's Hospital of Wisconsin
Milwaukee, WI

PI: Dr. Nancy Ghanayem
Phone Number: 414-266-6154

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Lurie Children's Hospital of Chicago
Chicago, IL

PI: Luciana Young MD
Phone Number: 773-880-8331

Enrolling patients in the following studies:
Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Vanderbilt University Medical Center - Monroe Carell Jr Children's Hospital
Nashville, TN

PI: Dr. Larry Markham
Phone Number: 615-343-2880

Enrolling patients in the following studies:
Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project
Children's Health Care of Atlanta
Emory University

PI: Dr. William Mahle
PI: Dr. William Border
Phone Number: 404-785-0040

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Medical University of South Carolina
Charleston, SC

PI: Dr. J. Philip Saul
PI: Dr. Andrew Atz
Phone: 843-792-7857

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Fontan Follow-up Study, Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

North Carolina Consortium
Durham, NC

Durham
Duke University Medical Center

PI: Dr. Jennifer Li
Phone Number: 919-668-6352

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Fontan Follow-up Study and Marfan

Johns Hopkins University
Baltimore, MD

PI: Dr. Hal Dietz
Phone Number: 410-502-2014

Enrolling patients in the following studies: Marfan

Nemours/Alfred I. duPont Hospital for Children
Wilmington, DE

PI: Christian Pizarro, MD
Phone Number: 302-651-6686

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension

Children's Hospital of New York
New York, NY

PI Name: Wyman Lai
Phone Number: 212-342-0524

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Fontan Follow-up Study, Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Mt. Sinai Hospital
New York, NY

PI: Dr. Bruce Gelb
Phone Number: 212-241-6012

Enrolling patients in the following studies:
Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Children's Hospital of Pittsburgh
Pittsburgh, PA

PI: Dr. Steven Webber
Phone Number: 412-692-6516

Enrolling patients in the following studies: Marfan

Children's Hospital of Philadelphia
Philadelphia, PA

PI: Dr. Robert Shaddy
PI: Dr. J. William Gaynor
PI: Dr. Stephen Paridon
Phone Number: 267-426-7214

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Fontan Follow-up Study, Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project, TEAM 4 Growth, Dexmedetomidine Study
The Hospital For Sick Children
Toronto, Ontario, Canada

PI: Dr. Brian McCrindle
PI: Dr. Steven Schwartz
PI: Dr. Seema Mital
Phone Number: 1-866-613-7778

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Fontan Follow-up Study, Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Ghent University Hospital
Ghent, Flanders, Belgium

PI: Dr. Julie DeBacker
Phone Number: 32-9-332.43.98

Enrolling patients in the following studies: Marfan

University of Michigan Health System
Ann Arbor, MI

PI: Dr. Caren Goldberg
PI: Dr. Richard Ohye
Phone Number: 734-615-4899

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project, Dexmedetomidine Study

Prairieland Consortium
Cincinnati, OH
Indianapolis, IN

Cincinnati
Cincinnati Children's Hospital
PI: Dr. Woodrow Benson
PI: Dr. James Cnota
Phone Number: 513-803-1153

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Indianapolis
Riley Children's Hospital
PI: Dr. R. Mark Payne
Phone Number: 317-278-6239

Enrolling patients in the following studies:
Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

National Heart, Lung, and Blood, and Institute
Bethesda, MD

Program Officer: Dr. Gail Pearson
Deputy Project Officer: Victoria Pemberton, RN, MS, CCRC
Phone Number: 301-435-0510
E-mail address: pembertonv@nhlbi.nih.gov

Primary Children's Medical Center
Salt Lake City, UT

PI: Dr. Richard Williams
PI: Dr. L. LuAnn Minich
Phone Number: 801-662-5487

Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension, Fontan Follow-up Study, Marfan, Pediatric Echocardiography Z-Score and Electrocardiogram Database Project, TEAM 4 Growth

Montefiore Medical Center
Bronx, NY

PI: Leo Lopez, MD
Phone Number: 718-741-2384

Enrolling patients in the following studies:
Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Children's National Medical Center
Washington, DC

PI: Craig Sable, MD
Phone Number: 202-476-4970

Enrolling patients in the following studies:
Pediatric Echocardiography Z-Score and Electrocardiogram Database Project


PHN Participating Hospitals

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